Partnering with Patients and Families to Design a Patient and Family Centred Health Care System


This report is based on the deliberations that took place at a one-day invitational meeting was convened by the Institute for Family-Centered Care (IFCC) in collaboration with the Institute for Healthcare Improvement (IHI) and on the recommendations that emerged from it. Its purpose is to provide guidance to key constituents in health care—patients and families, providers, administrators, educators, researchers, advocates, and funders—for advancing patient- and family-centered care, and specifically for creating partnerships with patients and families in quality improvement and health care redesign. Many of the report’s recommendations are illustrated by examples drawn from health facilities and other organizations that are making exemplary progress in partnering with patients and families.


  • Acknowledgements
  • Introduction
  • Ch. 1 - Making Partnerships with Patients and Families an Essential Aspect of Health Care Redesign and Quality Improvement
  • Ch. 2 - Creating Partnerships in Hospital Settings
  • Ch. 3 - Creating Partnerships in Ambulatory Settings
  • Ch. 4 - Educating Health Care Professionals
  • Ch. 5 - Educating Health Care Leadership
  • Ch. 6 - Evaluation and Research
  • Ch. 7 - The Role of Payers and Accrediting Licencing Organizations
  • Ch. 8 - The Role of Professional Associations and Disease-Specific Organizations
  • Ch. 9 - Creating Partnerships within Quality Improvement and Patient Safety Organizations
  • Ch. 10 - Supporting Patient and Family Members as Advisors and Leaders
  • Ch. 11 - The Role of Foundations, Government Agencies, and Corporations
  • Appendix A - Participant List
  • Appendix B - Visioning 
  • Appendix C - Questions on Which Report Recommendations Are Based
  • Appendix D - Index of Organizations and Programs

Type of Tool:

Publication Date: 
April 2008

Patient & Family Centered Care: A New Generation